My husband was recently diagnosed with Pleomorphic Rhabdomyosarcoma, a rare aggressive cancer. This blog details our journey with this disease...
Thursday, November 15, 2012
Shrinkage
The oncologist felt the "mothership" yesterday and is certain that it has SHRUNK. She estimated 3cm. This is great news given many adult soft tissue sarcomas do not respond to chemotherapy. We are on our knees. Jon also had his portacath inserted. This is a "button" placed under the skin near the collarbone. There is less risk of infection using the portacath to administer chemo verses a picc line. Ironically, Jon feared his wound was infected yesterday evening and made a quick trip to the ER. All is well--he just has an allergic reaction...Jon's oncologist noted his Alkaline Phosphotase (ALP) was a bit high so she ordered a bone scan. It is likely nothing to worry about--his numbers were elevated but not "through the roof". HIgh levels of ALP can be an indicator that the cancer is in the bone. He will have the bone scan tomorrow. Again, it is a just a thorough precaution...On a side note, Jon's hair really wants to hang on--Dr. P said it will will fall out in the next two weeks. My editor requested that I omit a portacath photo...
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Thank you so much for the updates, Sarah. You guys are in my thoughts and prayers throughout the day, each and every day. We are leaving for our Thanksgiving trip at the crack of dawn on Saturday, but I would really love to do something to make my love tangible to you both when I get back, whether it's watch the kids, deliver a meal, or take you for coffee. xoxo
ReplyDeleteYeah! Shrinking mothership!!! best news of my week!
ReplyDeleteHuge Hooray! for the encouraging news.
ReplyDeleteWe're on your knees, at your side, in relief and hope. (And perhaps in a search for a few keepsake Jon-hairs.)
May Thanksgiving bring even more good news from the bone scan...
With Love and Light from the McLaughlins
I didn't think the photo was that bad. It is all part of the journey. Unless the editor is Jon, then it is up to him.
ReplyDeleteLove and all our Best, Portia
Love and prayers from PA. Great to hear that there is progress!!! May you have a blessed and meaningful Thanksgiving week.....with unexpected amounts of strength, and of peace!!
ReplyDeleteJon and Sarah Lynn! You are one of 5 couples friends of mine who are on this cancer journey. So, I set aside time each day to pray for all of you. My van is my home away from home; I carpool back and forth to school, church, sporting events, etc....I spend a large amount of time in my van praying. I put on worship music, I sing at the top of my lungs and I speak my prayers for you!! (just wanted to write down that visual for you. smile).
ReplyDelete.....oxoxoxoxo........love, love, love
Meredith
TBTG for shrinkage! And prayers for clear scan. Keep breathing...long slow deep breaths. Prayers for all of you every day. Peace love & abiding hope. V
ReplyDeleteYul Brynner
ReplyDeletePatrick Stewart
Bruce Willis
Kareem Abdul-Jabbar
Telly Savalas
Michael Stipe
Michael Jordan
Jason Statham
Vin Diesel
to name a few...